Wednesday, March 23, 2011

If I know what's going on...

I took Noah to the PA today.  Ms. Stacey agrees with me that something is not right.  We already know he's severely ADHD.  Stacey told me to continue with the DHA I've been giving him but to up his dose from 1000 mg a day to 1000mg in the morning and 1000mg in the evening.  She said it should help a lot more.  She also wrote orders for labs (thyroid, vitamin D, and something else that I don't remember).  After the labs come back, we'll get referrals.  She is going to refer us to Dr. Rogers in Lubbock...a Nuero-developmental Pediatrician.  Stacey said that Dr. Rogers checks him out for all sorts of things including learning disabilities.  Stacey also suggested music lessons.  She confirmed with my brother-in-law, Doug, told me last year:  Playing music opens up the brain in places that cause damaged places in the brain to open up and heal themselves (that's my phrasing).  Gee, Uncle Doug, can't you move to Clovis to teach music so Noah can learn from his patient uncle who loves him and sees past his issues?!  Sorry...I digress.

So, the labs.  Stacey numbed his arms with a lotion and sent us to the outside lab.  We sit there for a few minutes and are called to register.  We spend time doing that, get him back there, and he's being a trooper.  The lady sticks him, nothing.  Stick number two.  Nothing.  Same thing with the next 3.  She tried both arms and his hand.  I could even see that she was hitting veins.  He would NOT bleed.  She said she feels he is dehydrated (I think so too).  Soooo tonight we're pushing fluids and he goes back tomorrow.  He's drank 2 bottles of Powerade and is working on his 3rd.  He also drank 2 Sunny Ds, and 3 cups of orange drink.  Hopefully he bleeds in the morning!

Why did I take him in to begin with?  Well, I should have done this YEARS ago but I figured he'd outgrow some of it like Oliver did.  He didn't.  He's gotten worse.  He won't eat certain textures.  He won't eat certain foods.  He has to have foods cooked a certain way.  He nearly always needs contact with people.  I get no less than 20 hugs a day.  I've started making him ask permission from me to hug and/or kiss me.  He often likes to be held like a baby.  He refuses to sleep in his own bed.  He sleeps with his brother (poor Oliver--Noah is a kicker).  He learns like a 4 year old.  He plays well with everyone but really likes to play with younger children.  THAT can be a problem!  He's bigger than most kids his own age, think about how much bigger he is than younger ones.

I just want to know what's going on with my kiddo.  If I know, I can help him.  I can teach him. 

9 comments:

  1. I wish I knew, honey. I really do. I feel so helpless.

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  2. Praying you guys can find answers and have a solid plan for going forward.

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  3. Ditto Vallere. Praying for wisdom.

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  4. Praying! How frustrating to see all the symptoms but not knowing the cause.

    You'll have to lmk when y'all are going to be in Lubbock - maybe we can meet up!

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  5. Praying that you can get some answers and solutions.

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  6. I can't imagine how frustrating that must be. I will definitely say a prayer.

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  7. Add me to this great group of prayer warriors. God is good, all the time.

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  8. I know where you are coming from Gidget. Can I recommend a book? It's called Quirky Kids by Perri Klass and Eileen Costello Perri Klass
    . It was so helpful to us when we learned that something was a bit "off" with Melody. Asperger's stuck out like a sore thumb when I read it and 2 years later we got that exact diagnosis. Check it out from the library and see if it helps.

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  9. Thanks, everyone!

    Dee, I always forget to return library books so I just ordered it on amazon. LOL Thanks for the suggestion; I'm looking forward to reading it.

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